News

Nov.02, 2018

Opening Press Conference of Taiwan Dravet

Opening Press Conference of Taiwan Dravet Association Parents of Dravet Syndrome patients have been working on solving their children’s problems indrug use, medication and finding medic ...

Oct.30, 2018

Thousands of People Jog for Rare Diseases

Start for Love, Let It Shine Thousands of People Jog for Rare Diseases What does it feel like when one thousand and five hundred people jog together at riverside side park? Especially thos ...

Oct.23, 2018

Respite Care Service for Patients' Families

Parents of rare disease families took part in activities in Changhua in central Taiwan on October13for experience exchanging and emotional support. At Beginning Cafe, coffee expert Lion explai ...

Oct.22, 2018

Painting Club Experience- One-day Campus Sketching

On the20th of October, dean of the NTPU College of Social Sciences, Min-Chieh Tseng, who is also the co-founder of Taiwan Foundation for Rare Disorders, conduced to an one-day campus s ...

Oct.15, 2018

Wen-Han You's Trip Around Japan by A Basket Bike

A new book launch for A Week in Japan, written by Wen-Han You, a patient with VHL (Von Hippel-Lindau), was held on October14at Kinokuniya Bookstore of Breeze Center Taipei. You&rsq ...

Sep.20, 2018

The 7th China Rare Disease Summit

The7th China Rare Disease Summit opened in Shanghai greatly during September14-16, 2018. The summit was held by Chinese Organization for Rare Disorders (CORD) and National Children M ...