News

Oct.20, 2019

Serena received International Rare Hero Award

Ms. Serena Wu, Founder of TFRD, received International Rare Hero Award “He must be possessed by ancestors without virtue.” This is a possible innuendo a rare disease patient ...

Aug.20, 2019

The Rare Disorders Experience Shares with Thailand

Taiwan Foundation for Rare Disorders (TFRD) was invited by Thai Rare Disease Foundation (ThaiRDF) to Bangkok on August16th, to share the experience with Thai government and rare dis ...

Aug.05, 2019

2019 BIO Asia-Taiwan Exhibition

Assistive Technology for Life (ATLife) was launched in Taipei Nangang Exhibition Center from July25th to28th, 2019. BIO Asia-Taiwan Exhibition which concerned and highly related with ...

Jul.23, 2019

Taiwan and Brazil Exchange Information about RD

There were five members of Brazilian Congress visited Taiwan from July22to25. One of the Congress members, Carla Zambelli, is the vice chairperson of the “Rare Diseases Front Line&r ...

Jul.06, 2019

Porphyria Patient Exchange Between Cross-Strait

At the end of2018, Dr. Hong-Zhou Guo of Linkou Chang Gung Memorial Hospital was invited by Chinese Organization for Rare Disorders (CORD) to share the experience in treatment of Tai ...

Jun.09, 2019

Rare 20 - LOVE WITH LIFE Music Concert

Rare20 - LOVE WITH LIFE Music Concert - All Stars Sing for Public Welfare About half of a year ago, The Chief Executive Officer of KEDP trust, Tim Lin called and said th ...