News

Oct.21, 2019

20th Int'l Conference in Taiwan (3)

During the afternoon session, the speakers shared their experiences in promoting patient groups. Dr. Dau-Ming Niu cited the Association of Congenital and Inherited Metabolic Disease of the R ...

Oct.21, 2019

20th Int'l Conference in Taiwan (2)

The conference was opened with the presentation by Dr. Shuan-Pei Lin, M.D., chairman of the TFRD, of a documentary filmed by the TFRD this year. The documentary helped the participants ...

Oct.21, 2019

20th Int'l Conference in Taiwan (1)

International Conference on Retrospect and Prospect of Rare Disease in Taiwan Hundreds of professionals from various countries shed lights on the past and the future of the efforts to help rar ...

Oct.20, 2019

Serena received International Rare Hero Award -2

Mrs. Serena C. Wu, founder of the Taiwan Foundation for Rare Disorders (TFRD), received the International Rare Hero Award from Rare Disease International (RDI) at the Asian Pac ...

Oct.20, 2019

Serena received International Rare Hero Award

Ms. Serena Wu, Founder of TFRD, received International Rare Hero Award “He must be possessed by ancestors without virtue.” This is a possible innuendo a rare disease patient ...

Aug.20, 2019

The Rare Disorders Experience Shares with Thailand

Taiwan Foundation for Rare Disorders (TFRD) was invited by Thai Rare Disease Foundation (ThaiRDF) to Bangkok on August16th, to share the experience with Thai government and rare dis ...