News

Dec.17, 2018

Taiwan ERT 20th Anniversary Celebration

Families have joined the TFRD in celebrating the20th anniversary of the introduction of life-saving Enzyme Replacement Therapy (ERT) into Taiwan, expressing appreciation to those who contr ...

Dec.15, 2018

2018 Patients of Moya Moya Disease Meet-up

There were17families, 34patients joining the meetup on December15, 2018. According to the survey before this reunion, we found that the patients are concerned about pre-operation caring and rehabil ...

Dec.13, 2018

Challenger Cup for Disabled Children

2018Challenger Cup- Charity Baseball Game for Disabled Children On December9th, TFRD formed baseball team of young rare diseases patients to join2018Challenger Cup- Charity Baseball G ...

Dec.05, 2018

44th Social Education Contribution Award

【Awards】TFRD Receives44th Social Education Contribution Award “Don’t ignore them because of their rarity. Rare disease patients bear the consequences of the inevitable risks ...

Dec.03, 2018

2018 Reunion of Williams Syndrome Patients

Reunion of Williams Syndrome Patients attracts many people each year. This year, it broke the record by being warmly attended by36families, 125people. This year, we invited Teacher Xie of Tai ...

Nov.26, 2018

Congratulation! TFRD Gets the Yuen-Shu Award

TFRD Has Been Awarded the Yuen-Shu Award Among Non-indigenous Groups Taiwan Foundation for Rare Disorders (TFRD) has continuously served for aborigines for many years. The founda ...