News

May.02, 2006

Myozyme, First Treatment Ever for Pompe Disease

Academia Sinica, Taiwan announced the first treatment ever for Pompe disease called Myozyme, co-developed by Genzyme, based in Cambridge, Mass along with several medical institutions in the U ...

Mar.31, 2006

TFRD on NORD's 2006 Spring Newsletter

TFRD's photo of International Conference on Genetic Medicine and Promoting Healthcare for Rare Disorders was published on NORD's Spring Newsletter. We invited Ms. Mary Du ...

Feb.11, 2006

Rare Children's Happy Yuan Xiao Festival

How is yuan xiao made? This year, Taipei Rotary Club Shih-Lin community service team and Kuo Yuan Ye Foods museum invited rare disease children to the museum for Yuan Xian Festival. Chi ...

Jan.15, 2006

Establishment of Taiwan Tuberous Sclerosis Complex

Establishment of Taiwan Tuberous Sclerosis Complex Association After three months preparation and numerous discussions, Taiwan TSC Association is finally established today. With everyone& ...

Dec.11, 2005

International Conference on Genetic Medicine

International Conference on Genetic Medicine and Promoting Healthcare for Rare Disorders2005Taipei In order to promote healthcare and genetic medicine issue on management on rare disorders, ...