News

Oct.28, 2006

Nutrition Class Shows You Low-protein Dishes

Let's cook! TFRD Nutrition Classroom Shows You How to Make Low-Protein Dishes For patients with inherited metabolic disorders, such as Phenylketonuria, MethymalonicAcidemia and M ...

Oct.04, 2006

New Hope for MPS II, ETR Launches in Taiwan

New Hope for MPS II, Enzyme Replacement Therapy Launches in Taiwan Mucopolysaccharidosis II (MPS II) is a mucopolysaccharide storage disorder also relatively known as Hunter Synd ...

Oct.01, 2006

TFRD Attended NORD 2006 Annual Conference

In September2006, the2006NORD Annual Conference was held in the UnitedStates, which focused on the topic of " Road Map for Rare Diseases Research". Our vice president, Pr. M ...

Sep.12, 2006

Network of Care: 9th Annual Asia LSD Symposium

Over200physicians and patient organization representatives gathered in Makuhari,Japan for the9th Annual Asia LSD Symposium, Network of Care: Leading the Way toSuccessful Disease Manage ...

Sep.07, 2006

NPC Patients Ask for Medication Reimbursement

Niemann-Pick Patients Ask for Medication Reimbursement Patient association for Niemann-Pick Disease had its inauguration ceremony on Sep. 07, 2006and at the same time, the medical team from ...

Sep.04, 2006

Seminars for Medical Personnel and Patient Groups

As people's awareness of issues for rare disease increases, people's needs andconcern for genetic counseling increases as well. However, average medicalpersonnel, specialists serving rare di ...