News

Apr.28, 2008

Upcoming: A Forum on FOP

A Forum on Fibrodysplasia Ossificans Progressiva, FOP, The Disease and Its Attending Nursing Fibrodysplasia ossificans progressiva, myositis ossificans progressive, FOP, is a very unu ...

Apr.03, 2008

New Subsidy for Pompe Disease Screening

One of the foundation’s purposes is to prevent and provide guidance to rare disorders. With the change in society and development of the economy, the world’s birth rate is declining rapi ...

Apr.02, 2008

Marathonmad Neil O'Maonaigh-Lennon Runs for RD

Marathonmad Neil O'Maonaigh-Lennon Runs Around the Island For Rare Disorders Early in the morning, Neil O’Maonaigh-Lennon, an English teacher from United Kingdom, started ...

Feb.10, 2008

Mommy's Story Hour Campus Advocacy Project

New program: Mommy's Story Hour campus advocacy project Being a rare disease patient in school, educational inequality is not rarely seen, which often leads to misunderstanding, low learning ...

Jan.04, 2008

Keep moving forward: New Services and New Vision

In2008, global economy crisis caused the shrinking economy, and up soaring unemployment rate. NGOs such as TFRD which rely on public donation alsosuffered from the reduction of donation income ...

Dec.05, 2007

The Subsidy of Assistive Devices Turns into Dawn

The Subsidy of Assistive Devices for Rare Disorders Finally Turns into Dawn In Taiwan, anyone who wants to get physically or mentally disabled social welfare must have the “physically ...