News

Jul.08, 2007

Congratulation! TFRD image representative, Yu-Xing

Could rare disease patients possess beautiful love? TFRD image representative, Yu-Xing, tells us the answer: yes! The onset of Yu-Xing's disease, Miyoshi Myopathy, occurred when she wa ...

Jul.06, 2007

Transferring Specimen Administrating Report

Transferring Specimen Administrating Report A-Ru, a girl affected by Niemann-Pick Disease Type C, has been looked after well by her parents. However, A-Ru’s parents desire to have ...

Jul.06, 2007

The Tissue Bank: New Light for RD Prevention

The Tissue Bank: New Light for Prevention of Rare Disorders TFRD conducted a seminar on “The Future for Tissue Bank of Rare Disorders and Genetic Diseases” in efforts t ...

Jun.24, 2007

The Communication between IPWSO and TFRD

From Romania to Taiwan: The Communication between IPWSO and TFRD International Prader-Willi Syndrome Organization (IPWSO) is an international organization, whose members are th ...

Apr.28, 2007

Honorary Director of the Board of TFRD

Honorary Director of the Board of TFRD, Shio Jean Lin, M.D. Won2007Award for Medical Dedication to Children Shio Jean Lin, M.D., an honorary director of the Board of TFRD, w ...

Apr.20, 2007

2007 Heavenly Melody Chorus Concert

Heavenly Melody Chorus Concert Full of Laughter and Tears Syue-Fang, a34-year-old girl with Achondroplasia, who is independent, strong-minded, and enthusiastic, regularly takes4 hours from m ...