Upcoming: 2009 International Conference

Upcoming:"2009 International Conference of National Policies and Actions on Rare Disease"

Monday 12 October 2009 
Joyful Ballroom, B2, Sheraton Taipei Hotel, Taiwan 

Taiwan's Rare Disease Control and Orphan Drug Act has been approved and practiced for nine years since 2000.Looking at the results of the preventions of genetic disorders in Taiwan, from planning, implementing, running to tracking, it is all because of the cooperation between academic, medical and health organizations that we were able to achieve what we have today. With the effort of the government and civil organizations, Taiwan has established an organized health and social services system for the rare disease patient. The 2009 International Conference of National Policies and Actions on Rare Disease, held by Taiwan Foundation for Rare Disorders (TFRD), aims at sharing and exchanging experiences with other countries with similar policies. As we approach the 10th annerversary of both TFRD and the Rare Disease Control and Orphan Drug Act's implementation, we hope to strengthen the interaction with other countries so that we have more opportunities to share our own experiences and to learn from each other. 

There are three main subjects in this conference: 
(1)The medical and social welfare for rare disease patients; 
(2) The healthcare for the rare disease patient under Taiwan National Health Insurance 
Program; 
(3) The formation and amendment on Orphan Drug regulation. 

If you are interested in these issues and wish to register for the conference, please 
pay close attention to our official website: http://www.tfrd.org.tw/english/  

For more information, please contact us at: rp03@tfrd.org.tw. 

Enclosure:
1.Conference Agenda (draft) 
2.Registration Form