News

Oct.01, 2007

AADC Patient Group to Fight for Children's Rights

The patient group of AADC was formally established in the fall of2007an expectation to help families affected with AADC patients sharing their life stories, caretaking experience, as well as ...

Aug.07, 2007

Trip Freedom, Trip to Love

How would you define the term “Freedom”? For Healthy people, traveling can be easily achieved. But for patients on wheelchairs, traveling is never an easy way. As for rare disease pa ...

Aug.03, 2007

Expression of Hope by Touching Paintings

Taiwan Foundation for Rare Disorders held the painting contest, expression of hope by paintings, inviting rare disorder patients to express hope and dreams on drawing papers. Most rare disorder p ...

Jul.18, 2007

Exchanging Experience with South Eastern Asia

Exchanging Experience with the Patient Representatives from South Eastern Asia Patient group representatives from south eastern Asian countries visited TFRD on18, July2007. They are fro ...

Jul.08, 2007

Congratulation! TFRD image representative, Yu-Xing

Could rare disease patients possess beautiful love? TFRD image representative, Yu-Xing, tells us the answer: yes! The onset of Yu-Xing's disease, Miyoshi Myopathy, occurred when she wa ...

Jul.06, 2007

Transferring Specimen Administrating Report

Transferring Specimen Administrating Report A-Ru, a girl affected by Niemann-Pick Disease Type C, has been looked after well by her parents. However, A-Ru’s parents desire to have ...