News

Sep.02, 2006

TFRD Invited to International Symposium in Korea

TFRD Invited to the International Rare Disease Symposium in Korea TFRD's vice president, Dr. Min-Chieh Tseng was invited for a speech at theRare Disease International Symposi ...

Aug.12, 2006

We Should Be Humble International Press Conference

We Should Be Humble When Facing the Dignity of Life?? International PressConference We just held an international press conferece on Aug.12, which was about the sadcase of misdiagnosis of ...

Jun.23, 2006

Taiwan's New Expanded Newborn Screening Policy

Newborn screening has been implemented for22years in Taiwan. Method development pilot programs were carried out in mentally retarded children between1982and1983in Taiwan. Later in1984, based on t ...

May.02, 2006

Myozyme, First Treatment Ever for Pompe Disease

Academia Sinica, Taiwan announced the first treatment ever for Pompe disease called Myozyme, co-developed by Genzyme, based in Cambridge, Mass along with several medical institutions in the U ...

Mar.31, 2006

TFRD on NORD's 2006 Spring Newsletter

TFRD's photo of International Conference on Genetic Medicine and Promoting Healthcare for Rare Disorders was published on NORD's Spring Newsletter. We invited Ms. Mary Du ...

Feb.11, 2006

Rare Children's Happy Yuan Xiao Festival

How is yuan xiao made? This year, Taipei Rotary Club Shih-Lin community service team and Kuo Yuan Ye Foods museum invited rare disease children to the museum for Yuan Xian Festival. Chi ...