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TFRD received the National Civic Service Award awarded by the NPO ServiceOrganization in recognition of our contribution in servicing rare disease patients.TFRD has been servicing rar ...
Let's cook! TFRD Nutrition Classroom Shows You How to Make Low-Protein Dishes For patients with inherited metabolic disorders, such as Phenylketonuria, MethymalonicAcidemia and M ...
New Hope for MPS II, Enzyme Replacement Therapy Launches in Taiwan Mucopolysaccharidosis II (MPS II) is a mucopolysaccharide storage disorder also relatively known as Hunter Synd ...
In September2006, the2006NORD Annual Conference was held in the UnitedStates, which focused on the topic of " Road Map for Rare Diseases Research". Our vice president, Pr. M ...
Over200physicians and patient organization representatives gathered in Makuhari,Japan for the9th Annual Asia LSD Symposium, Network of Care: Leading the Way toSuccessful Disease Manage ...
Niemann-Pick Patients Ask for Medication Reimbursement Patient association for Niemann-Pick Disease had its inauguration ceremony on Sep. 07, 2006and at the same time, the medical team from ...
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