Book

Nov.13, 2023

Recommendation on Innovative Treatment and Drug Reimbursement for Rare Diseases

Recommendation1: Implementing social health insurance to increase the accessibility to orphan drugs1. Protecting the medical rights of rare disease patients. Taking care of said patients shows the ...

Sep.01, 2022

Leap ~ 2022 Art Book by RD Patients

The " Leap ~ 2022Art Book by RD Patients" is the achievement book of TFRD in the2022Cultural and Creative Exhibition. Exercise serves not only as a means of rehabilitation but ...

Dec.22, 2020

20th Anniversary of Legislation for Rare Disorders

This publication reviews the achievements of the implementation of Taiwan Rare Disease and Orphan Drug Act (RDODA) in the past20years. It contains the services and supports from the gover ...

Sep.30, 2019

Rare and Precious Life

In2001, the book The Garden in A Hopeless Land portrayed the life stories of7 rare disease patients. Years later, Rare and Precious Life carries more stories with twists and turns, featuring ...

Oct.29, 2009

The 8 Lessons that Qing Qing Taught Me

The Chinese version of the book, published in2008, was originated from a blog of a father who simply wished to share what he learned through the life of his brave little girl- Zeng Qing. Qing was ...

Mar.06, 2006

The Garden in A Hopeless Land

This book contains seven stories, recording the journeys of a small group of people. They have struggled through illness to transform a withered land into a field teeming with life. On their sickbe ...