Book

Oct.25, 2024

Firefly Story Island Ⅰ (5): Dr. Bushy-Beard Hunter

In2015, TFRD and Philharmonic Radio Taipei (PRT) produced “Firefly Story Island”, a12-episode series of musical audio dramas about rare diseases. Through the storyteller Pe ...

Oct.24, 2024

Firefly Story Island Ⅰ (4): Sunny Jamie

In2015, TFRD and Philharmonic Radio Taipei (PRT) produced “Firefly Story Island”, a12-episode series of musical audio dramas about rare diseases. Through the storyteller Pe ...

Oct.23, 2024

Firefly Story Island Ⅰ (3): Curious Case of Carrol

In2015, TFRD and Philharmonic Radio Taipei (PRT) produced “Firefly Story Island”, a12-episode series of musical audio dramas about rare diseases. Through the storyteller Pe ...

Oct.22, 2024

Firefly Story Island Ⅰ (2): Nana's Dreamland

In2015, TFRD and Philharmonic Radio Taipei (PRT) produced “Firefly Story Island”, a12-episode series of musical audio dramas about rare diseases. Through the storyteller Pe ...

Oct.21, 2024

Firefly Story Island Ⅰ (1): The Mission of the Firefly Warrior

In2015, TFRD and Philharmonic Radio Taipei (PRT) produced “Firefly Story Island”, a12-episode series of musical audio dramas about rare diseases. Through the storyteller Pe ...

Nov.18, 2023

Artistic Life ~ 2023 Art Book by RD Patients

The theme of this exhibition is " Artistic Life ". In addition to the existing works of the Rare Mind Painting Class in the North, Central and South regions, the Taoyuan-Hsinchu ...

Nov.13, 2023

Recommendation on Innovative Treatment and Drug Reimbursement for Rare Diseases

Recommendation1: Implementing social health insurance to increase the accessibility to orphan drugs1. Protecting the medical rights of rare disease patients. Taking care of said patients shows the ...

Sep.01, 2022

Leap ~ 2022 Art Book by RD Patients

The " Leap ~ 2022Art Book by RD Patients" is the achievement book of TFRD in the2022Cultural and Creative Exhibition. Exercise serves not only as a means of rehabilitation but ...

Dec.22, 2020

20th Anniversary of Legislation for Rare Disorders

This publication reviews the achievements of the implementation of Taiwan Rare Disease and Orphan Drug Act (RDODA) in the past20years. It contains the services and supports from the gover ...