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In2015, TFRD and Philharmonic Radio Taipei (PRT) produced “Firefly Story Island”, a12-episode series of musical audio dramas about rare diseases. Through the storyteller Pe ...
The theme of this exhibition is " Artistic Life ". In addition to the existing works of the Rare Mind Painting Class in the North, Central and South regions, the Taoyuan-Hsinchu ...
Recommendation1: Implementing social health insurance to increase the accessibility to orphan drugs1. Protecting the medical rights of rare disease patients. Taking care of said patients shows the ...
The " Leap ~ 2022Art Book by RD Patients" is the achievement book of TFRD in the2022Cultural and Creative Exhibition. Exercise serves not only as a means of rehabilitation but ...
This publication reviews the achievements of the implementation of Taiwan Rare Disease and Orphan Drug Act (RDODA) in the past20years. It contains the services and supports from the gover ...
In2001, the book The Garden in A Hopeless Land portrayed the life stories of7 rare disease patients. Years later, Rare and Precious Life carries more stories with twists and turns, featuring ...
The Chinese version of the book, published in2008, was originated from a blog of a father who simply wished to share what he learned through the life of his brave little girl- Zeng Qing. Qing was ...
This book contains seven stories, recording the journeys of a small group of people. They have struggled through illness to transform a withered land into a field teeming with life. On their sickbe ...
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