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About TFRD

Home About TFRD Publication

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Book

Nov.01, 2025

My World of Imagination ~ 2025 Art Book by RD Patients

When imagination is free to soar, the future holds infinite possibilities. For people living with rare diseases, daily life may present many challenges, yet in their hearts, the longing for dreams h ...

Aug.20, 2025

Firefly Story Island II (4): Twinkle’s Memories

In2015, TFRD and Philharmonic Radio Taipei (PRT) produced “Firefly Story Island”, a12-episode series of musical audio dramas about rare diseases. In2016, we collaborated onc ...

Aug.19, 2025

Firefly Story Island II (3): The Lucky Star Over the Snow Kingdom

In2015, TFRD and Philharmonic Radio Taipei (PRT) produced “Firefly Story Island”, a12-episode series of musical audio dramas about rare diseases. In2016, we collaborated onc ...

Aug.18, 2025

Firefly Story Island II (2): Iron Prince

In2015, TFRD and Philharmonic Radio Taipei (PRT) produced “Firefly Story Island”, a12-episode series of musical audio dramas about rare diseases. In2016, we collaborated onc ...

Aug.14, 2025

Firefly Story Island II (1): Twinkle's Little Helpers

In2015, TFRD and Philharmonic Radio Taipei (PRT) produced “Firefly Story Island”, a12-episode series of musical audio dramas about rare diseases. In2016, we collaborated onc ...

Dec.17, 2024

Meeting the Self Within ~ 2024 Art Book by RD Patients

Who am I? This is a question many people often ask themselves in moments of self-reflection. For patients with rare diseases, this question takes on even greater significance, as they frequently n ...

Nov.12, 2024

Firefly Story Island Ⅰ (12): Little Tadpole with Great Ambition

In2015, TFRD and Philharmonic Radio Taipei (PRT) produced “Firefly Story Island”, a12-episode series of musical audio dramas about rare diseases. Through the storyteller Pe ...

Nov.05, 2024

Firefly Story Island Ⅰ (11): Let's Dance! Extraordinary Girl

In2015, TFRD and Philharmonic Radio Taipei (PRT) produced “Firefly Story Island”, a12-episode series of musical audio dramas about rare diseases. Through the storyteller Pe ...

Nov.04, 2024

Firefly Story Island Ⅰ (10): The Sky is The Limited - Glass Doll

In2015, TFRD and Philharmonic Radio Taipei (PRT) produced “Firefly Story Island”, a12-episode series of musical audio dramas about rare diseases. Through the storyteller Pe ...

My World of Imagination ~ 2025 Art Book by RD Patients

Nov.01, 2025

Firefly Story Island II (4): Twinkle’s Memories

Aug.20, 2025

Firefly Story Island II (3): The Lucky Star Over the Snow Kingdom

Aug.19, 2025

Firefly Story Island II (2): Iron Prince

Aug.18, 2025

Firefly Story Island II (1): Twinkle's Little Helpers

Aug.14, 2025

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Taiwan Foundation For Rare Disorders

  143429 tfrd@tfrd.org.tw
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