Firefly Story Island II (1): Twinkle's Little Helpers
In 2015, TFRD and Philharmonic Radio Taipei (PRT) produced “Firefly Story Island”, a 12-episode series of musical audio dramas about rare diseases. In 2016, we collaborated once again with PRT for the second season of Firefly Story Island, producing another 12 episodes. Through the storyteller Pei-Yu Chiu’s vivid and magical voice, children are introduced to different types of rare diseases in interesting stories. It not only strikes a chord with the public, but also raises awareness of rare diseases from campus to families, and even provides another way of learning which is no longer limited by time and space.
In addition to listening, visual learning through pictures and symbols are also critical to children of school age and pre-school for understanding the world. In order to promote these elaborate stories about rare diseases, TFRD invited Chia-Mei (Thalassemia Major) and Ya-Chen (Beckwith Wiedemann Syndrome, BWS), to create 12 episodes of musical broadcast into a series of picture books - "Firefly Story Island II ". Through vivid scene in the picture books, Twinkle the firefly guided the children walked into a story and learned about rare diseases together.
There are 12 volumes of "Firefly Story Island II " picture books in this series. Each volume had a different rare disease as the topic. Include Introduction, Giant Congenital Melanocytic Nevus (GCMN), Charcot Marie Tooth Disease (CMT), Cockayne Syndrome, Idiopathic or Heritable Pulmonary Arterial Hypertension, Spinocerebellar Ataxia (SCA), Marfan Syndrome, Acromegaly, Hyperammonemia Syndrome, Waardenburg Syndrome, Fabry Disease and Rett Syndrome.
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