Rare Disease Welfare Center

Environment

11. Nutrition Classroom & Cafeteria

Some rare disease patients need special dietary care, including a low-protein diet, high-calorie tube feeding or foods that promote immunity. The room is a venue for dietetic therapy, providing rare disease families with hands-on information on food safety and nutrition management.

The Nutrition Classroom & Cafeteria is entirely barrier-free and equipped with cooking stations that can be used by visitors in wheelchairs, and the stoves are all embedded according to safety standards. The space is carefully designed so that every family with rare disease patients can have healthy meals and fun in a safe space. These are achieved due to the support from Taipei Force for Good Foundation under NU SKIN and Holy Stone Foundation, so that users can have fantastic kitchen facilities to fix great meals.

12. Horticulture Classroom & Greenhouse

Through Horticultural therapy, rare disease patients can improve memory, cognitive abilities, task initiation, language skills, and socialization as well as relaxation.

Horticulture Classroom provides rare disease families with horticultural courses / activities. Greenhouse is a place where small potted plants are available for viewing and working. Patients can also get rehabilitation when gardening.

It is hoped that with small-scale growing of organic local crops, Chinese herbs, and vanilla, patients and their families can experience fertilizing, weeding, watering, and harvesting. The harvested crops will then become ingredients for restaurants on farms, thereby helping participants learn to take on different tasks. This arrangement comes from the sponsorship and support from Nan Shan Life.

13. Administrative Service Office

The Center also comes with a service center for patients in Taoyuan, Hsinchu, and Miaoli areas. Services provided include medical consultation, home visits, vocational training and employment referrals, school transfers, social welfare consultation, emergency response, and there are also materials and supplies. The Center is staffed with 3 to 4 social workers and multiple psychologists, rehab therapists, and care attendants to provide services including psychological consultation, rehab training, and bathing. In addition, the Center receives a sponsorship by the 7th Charity Award of Spreading Good for a chartered vehicle to assist patients with limited mobility to visit the Center, where they can receive customized early interventions, rehab programs, and sometimes three-day programs with in-depth practices.

The Center was built upon the service center for patients in Taoyuan, Hsinchu, and Miaoli areas, coupled with the Taipei Office of TFRD, and the Taichung Office and Kaohsiung Office, to form a comprehensive network nationwide to serve rare disease patients. The credit goes to Ms. De-Shan Chen for sponsoring the establishment of the service center for patients in Taoyuan, Hsinchu, and Miaoli areas, Aurora Group for office equipment, and Kuan -Shu Educational Foundation for ASUS computers and equipment, adding to the happiness of patients in such areas.